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Day 04 Feb 15 2013

Gem legs (Suggested size for full Size Media Gallery Image - 800px wide)

This is my regular view.
I’m shattered today. I think I’ve been on a high all week. I’ve tried to make a point to myself by walking a lot and working a lot and arranging late meetings.
Starting this treatment has allowed me to let the mask slip. I’ve never felt right since my last round of treatment. I’ve steadily got more and more tired. Felt more and more aches and pains and seen fewer and fewer people. Life has become really quite narrow.
I can’t rely on myself to turn up to work every day. I never arrange meetings past 4o’clock as I’m highly likely to cancel them. And I can count on one hand how many times I’ve been out in the evening over the past year.

I haven’t felt hard done by or even cared particularly. I’m really lucky to work at The Hep C Trust and have a boss who understands, although my attendance recently could push even him. I haven’t let my situation get me down at all until now when I know it might be close to the end and I’m allowing myself to think, this is shit actually!

In case you were wondering, my granny crocheted the blanket.

4 comments

Rating: 3/5dgdfg
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BOTTES UGG PAS CHER from CXVVXCV, 10 July 2014 03:12
Rating: 5/5Good Luck
Hi there
Good luck with the treatment, I am really interested to hear how you are getting on.....as my husband was hoping to get on a trial drug recently, but didnt meet the criteria.....We are hoping it comes on the market sooner, rather than later.
I empathise with this post.....I can see how the virus can get you down. I only had it a little while...am at week 3 post telaprevir treatment...and still feel awful....I hope that I begin to recover soon, as the interferon has really messed with me! I have also become a recluse, and avoid people now.....I am hoping that it will improve...good luck.
I also know how important the comments are!
Penny from UK, 18 February 2013 21:07
Rating: 5/5Reply to John
Hi John,
Thank you so much for your comment. It's great getting comments. Yes I am on the Abbot trial but they've changed their name to AbbVie. Your treatment sounds a lot more intense than mine is going to be. However, I did do 48 weeks back in 2005 so I know what you are going through. Also you are right about getting the proper drugs eventually if you are on the placebo so I'm in luck really. All the best and let me know how you are getting on. Gemma
Gemma from London, 16 February 2013 19:57